As the Chair of Local families with bleeding disorders, I am continually inspired by the incredible bravery of children living with bleeding disorders such as haemophilia and von Willebrand disease. They face daily challenges with a strength and resilience that is truly remarkable.
As we all know, managing a bleeding disorder often involves complex and demanding treatments, from regular infusions to advanced therapies, all aimed at preventing bleeds. For children, this can mean enduring frequent intravenous injections from their healthcare team or, even learning to manage their own treatment from a young age. Their ability to adapt and take ownership of these treatments is nothing short of extraordinary.
Unexpected bleeds can bring pain and hospital visits, disrupting their routines and social lives. These children also navigate the emotional challenges of living with a chronic condition. Despite these challenges, they show remarkable resilience. Whether they’re undergoing treatment, participating in physiotherapy, or recovering from a joint bleed, they face obstacles with determination and courage.
At Local families with bleeding disorders, we are proud to support not only these children but importantly their wider families whether that be parents attending appointments and helping with treatment, siblings comforting them when they are struggling with bleeds or treatment or grandparents who offer emotional support for all.
Through our events, we witness their incredible strength, the bonds they form, and the hope they inspire. Through our bravery awards we recognise our heroes that face challenges and difficult times and yet do their best at all times to find a way through.
To every child living with a bleeding disorder, you are an inspiration. Your bravery reminds us that courage is not the absence of fear but the determination to persevere. We celebrate you and commit to standing beside you every step of the way. If you have a little hero in your family, please contact us for a special bravery award.