Author: Steph

  • Celebrating Our Volunteers – The Heart of LFWBD

    As Chair of Local Families with Bleeding Disorders, I want to take a moment during Volunteers’ Week this week to thank the incredible volunteers who keep our charity running.

    LFWBD simply wouldn’t exist without the time, energy, and dedication of our volunteer team. From organising events and supporting families, to managing finances, admin, communications, and everything in between, it’s our volunteers who make it all happen.

    Their work often goes unseen.  Organising and attending the events we run are a very important part of what we do but so much more goes on behind the scenes that could easy go unnoticed.   But this is the important work that needs to be done to ensure the charity remains on track, has a solid future and remains within the laws of the charities commission whilst also staying true to our constitution. They are also the friendly faces greeting families at our events to make sure everyone feels welcome and included.

    Their commitment ensures that families living with bleeding disorders have a safe, supportive space to connect, share experiences, and enjoy themselves. We are incredibly lucky to have such a passionate, ambitious, caring and generous team.

    So to each and every one of our volunteers – thank you. You bring our mission to life, and we are grateful always for everything you do. LFWBD wouldn’t be the same without you. You are truly the heart of our community.  And if you would like to join our team, please do drop us a line at info@bleeding-disorders.co.uk.

  • Thank You to Our Wonderful Nursing Team

    As Chair of our local bleeding disorders charity, I’m delighted to share a little update about a very special afternoon we recently enjoyed. On Saturday, we had the absolute pleasure of treating some of the amazing nurses who care for our families to a well-deserved afternoon tea in London. It was a lovely opportunity to relax, chat, and say a huge thank you for the incredible work they do.

    Our nurses are such an important part of our community. Their care, dedication, and compassion make a real difference every day in the lives of families living with bleeding disorders. It was wonderful to spend time together outside of the hospital setting, to laugh, share stories, and simply enjoy each other’s company.

    We also took the chance to thank them for the positive impact they have—not just medically, but emotionally and socially—on the families they support. We told them more about Local families with bleeding disorders and hope that they will continue to spread the word about our charity, encouraging families to join us for our fun days out and online support groups.

    Our charity exists to bring families together, reduce isolation, and help everyone feel supported and understood. Whether it’s through social events, information sharing, or just having someone to talk to, we’re here for every family.

    Thank you again to our incredible nurses. We’re already looking forward to the next time we can spend a little time together, away from the pressures of work.