April 17th marks World Haemophilia Day — a time to reflect, raise awareness, and stand united with everyone affected by haemophilia and other bleeding disorders. As Chair of Local Families with Bleeding Disorders (LFWBD), I know firsthand how vital it is to acknowledge the varied experiences of individuals and families living with these lifelong conditions — across generations and around the globe.
This year’s theme, “Women and Girls Bleed Too,” confronts a long-overlooked truth: too many women live with undiagnosed or misdiagnosed bleeding disorders. Their symptoms are often dismissed, misunderstood, or minimised. Today is a day to shine a light on their stories and push for greater recognition, earlier diagnosis, and equitable care.
Living with a bleeding disorder isn’t easy — it takes resilience, adaptability, and constant vigilance. From managing daily routines to navigating emergencies, the impact is felt across every aspect of life. And yet, within our community, there is so much strength. At LFWBD, we are proud to support our members — not just today, but every day.
We also pause to thank the dedicated medical professionals who work tirelessly to support patients and families. Your expertise, empathy, and commitment are paramount to being able to live the best life we can with bleeding disorders.
Today is a day for visibility, for advocacy, and for solidarity. To everyone living with a bleeding disorder — especially the women and girls whose voices are finally being heard — we see you, we stand with you, and we will continue to fight for better awareness and better care.