As Chair of Local Families with Bleeding Disorders (LFWBD), it was so lovely to see our families come together recently for a fantastic day out at the Science Museum in London. From the moment we arrived, there was a real buzz of excitement as children and adults alike explored the exhibits, chatted among themselves and got hands-on in the Wonderlab.
One of the highlights of the day was simply being together. Sharing lunch gave everyone the chance to slow down, chat, and connect — catching up with old friends and welcoming new families into our community. These moments matter. They help build the networks and friendships that make living with a bleeding disorder feel less isolating. And it is what we, at LFWBD are all about. We organise these events but, it is the people that come to them that really make them happen.
The importance of sharing stories with people who truly “get it” was not only apparent on the day but also, reflected so clearly in the feedback we received afterwards. One family told us: “Our daughter had the best time and hasn’t stopped talking about it. Being reunited with her friend was her favourite part — two brave little girls showing everyone that you can still enjoy yourself even when living with a bleeding disorder.” Others shared how wonderful it was to reconnect with familiar faces, meet new ones, and even discover families living right on their doorstep.
These comments remind us exactly why we do this. It really inspires our committee and motivates us to continue to put on events like this.
A huge thank you to Marie, who organised the day and, as always, did a fantastic job. We’re already looking forward to the next adventure together.