News - October 2019

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Thanks to Amanda Nercessian-Keysell and her family, we were chosen by St.Michael's Montessori Nursery in Barnes as their Christmas Charity of the year. Raffy is currently at the nursery and, they have been amazing at learning all about with his haemophilia so that they can take good care of his and support his family. This is another great opportunity for us to raise awareness amongst another group of local families

100 parents and children aged between 9-17 from Radnor House will be climbing Scafell Pike to raise money for our group. This is a fantastic opportunity for them to raise awareness of our group and the challenges our families live with day to day as well as raise vital funds to help us put on the events that we do throughout the year.

On 22nd October the committee met to dicuss upcoming events and fund raising plans. This time, they were joined by Kelly Bellamy, our Communications Consultant and Laurence Woollard, Founder and Director of On The Pulse Consultancy which provides "Independent expert patient insight into living with the rare bleeding disorder, haemophilia, to UK and global healthcare providers, to improve the overall care experience."

Michelle Bibby will be holding a Halloween stall outside the school every day for the whole of Halloween week. She has a great 'naughty and nice' lucky dip planned and will be dressing up to fit the Halloween theme!

This Halloween, The families at Local families with bleeding disorders have decided to take a different approach to trick or treating.
Anyone knocking on the doors of some of our families in Kent, Essex and London will be lucky enough to be given a free Lego mini figure and a bookmark both with details of our group to raise awareness of bleeding disorders across our community. Well done team. Lovely idea to spread the word about us.