A few years back when my son (severe A) was one years old, I couldn't even imagine travelling
abroad with him. Luckily my husband (the less anxious of the two) made us, 3 months after
he had his port-a-cath fitted and we have been abroad every year since. In fact as we normally
take a beach holiday, it's the safest place he is all year round - all that sand makes for soft
landings! So here are a few tips and things we have learnt along the way.
1. Get a letter from your consultant explaining the condition, why you need to carry
treatment, products, needles etc. and why it needs to stay in the cabin with you (our
hospital has a generic letter they give us each year). You will need this when going
2. Holiday insurance - we have had little trouble with insurance and have found that most
companies insure Haemophilia. You will need to fill out extra information about the
condition, very self-explanatory.
3. Find a list of Haemophilia centres close to where you are travelling and print it off to
take with you. You can search at the following
4. Ask your factor delivery company if they can provide a travel syringe box to take with
you, they are much smaller than the standard ones.
5. Take enough factor and supplies for your stay and take extra for top ups. Our centre
recommends between 3-5 extra doses for 10 days (as you can imagine I take 6!)
6. Take a small cool bag and ice block if going to a hot climate to take in car etc. (
as although most factor can be kept out of the fridge for a period of time, it cannot exceed
very hot temperatures).
7. Carry your factor with you on-board the plane, to avoid lost luggage, breakages and
temperature variations in the hold.
8. Remember although in another country you can still phone your normal centre and
out-of-hours line to get advice.
9. If going to Disneyland remember to take evidence (letter, DLA, Blue badge) you can
jump the queues!