Jacob's Story

Jacob was diagnosed at 6 months old as a Severe B Haemophiliac. There had been no history of Haemophilia in the family, so it was all a bit of a shock, and a huge learning curve.

Jacob is under the wing of the amazingly supportive Evelina Hospital, at Guys and St. Thomas'. Shortly after his 1st birthday, Jacob had his Portacath fitted, and began his prophylaxis treatment.

For the first 3 years, his treatment plan was twice weekly, but due to medical advances, he is now treated once a week.

Treatment is given at a time that makes him "stronger" for his expected activity schedule, and he is involved in everything just like every other kid in his class.

Jacob has been on multiple ski trips, and lives life to the full.

With the support of the community we all share stories and advice that help each other through the new hurdles we experience, as our boys grow.

Video Link:Go Ape Video

Video Link: Jacob's Injection Documentary for Newly Diagnosed

Video Link:Jacob's Injection Documentary for Newly Diagnosed. Pt2 - Idelvion Update