|Lisa Steadman, Chair|
14 Year Old Severe Haemophilia A Boy With Inhibitors
I have a 14 year old son who has Severe Haemophilia A with inhibitors. I love being part of this community. The bravery of our children and parents never ceases to amaze me, whether it be facing an unexpected diagnosis, dealing with bleeds, undergoing surgery, learning to inject your child, letting them go off to school, standing back and letting them become independant, there is always a challenge to face. There are so many stages families go through to ensure a safe and happy life for their children that, I really wanted to try and bring those families together. I want to help create the opportunities to meet and have some fun, share some stories and experience and, show our mutual respect for one another in all the challenges we overcome.
| Carreen McCay, Secretary|
9 Year Old Severe Haemophilia A Boy With Inhibitors
My name is Carreen McCay I am Mum to Isabella and Henry.
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| Jackie Redmond, Treasurer|
12 Year Old Severe Haemophilia A Boy
I'm a haemophilia carrier and my eldest son, Thomas, has severe haemophilia A. When Thomas was first diagnosed with the condition I knew very little about bleeding disorders, but thanks to a small support group organised by our haemophilia nurse I was able to meet up with other families where I received vital support and guidance. That small support group, consisted of just a few families, but it helped me find answers to so many questions, and gave Thomas a chance to meet other boys with haemophilia, making him realise that he was not alone. Local Families With Bleeding Disorders is a much larger version of the support group that we found so helpful, and as a qualified management accountant, I am pleased to be able to offer my skills as treasurer of this group.
|Anna Harris, Committee Member|
1 Year Old Severe Haemophilia B Boy
I'm Anna from Essex; my youngest son was diagnosed as having Haemophilia Severe B Type in 2017 and we were soon navigating an unknown world of bleeding disorders. The community of families walking the walk ahead of us was so supportive, I wanted to be a committee member to be part of this valued community, sharing experiences, supporting one another and providing our children and their super siblings with support too.
|Natalie and Danny Jarman, Committee Members|
9 Year Old Severe Haemophilia A Boy
My husband Danny and I decided to join the committee for local families with bleeding disorders because our son Ollie has severe Haemophilia a, and we think that it would be wonderful to help bring families like our own together. So that we are able to not only share experiences with each other, but also learn from others too.
|Michelle Bibby, Fund Raising Coordinator|
7 Year Old Severe Haemophilia A Boy
I'm so happy to be a part of this amazing group.
|Christina Burgess, Committee Member|
European Haemophilia Consortium Inhibitor Working Group Member
Director of Haemophilia and Bleeding Disorders Counselling Association (HBDCA)
Christina originally trained as a counsellor with British airways many years ago so the importance of psychological
support has always been a passion for her. She became Head of Services at The Haemophilia Society in 2014, and,
during the four years she was there, devised and developed many of the services of support that are there to
the present day. During this time, she became completely committed to the bleeding disorder community,
recognising what a special and unique community it is. Christina left the Society in October, 2017.
She decided, having realised that there was a lack of effective, accessible, FREE psychological support
available for people with a bleeding disorder and their families and carers, to set up HBDCA (Haemophilia
and Bleeding Disorders Counselling Association).