News - January 2021

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19th January 2021 - Webinar; patient experience of Hemlibra

Our webinar was very well attended by members. We had four fabulous members come along to talk to us about their patient experience of being on Hemlibra. One had been involved in the first trials, one moved to Hemlibra n adult life, one as a child and one mother spoke to us about her baby that has never bene on factor, only Hemlibra. It was a wonderul mix of accounts and they did agreat job at answring many questions from our members.

26th January 2021 - Committee meeting with Kate Burt

Kate has recently become the new CEO of The Haemophilia Society. We invited Kate along to meet with our committee members as she was keen to find out more about the work that we do. It was a great session and Kate was very impressed by our work and sense of community.