News - July 2019

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Parklane Scaffolding
1st July 2019 - Parklane Scaffolding become our newest sponsors

Parklane Scaffolding - become our newest sponsors with a £200 donation to our local group. Based in Wallington they understand how important groups like ours are in supporting local families with similar health challenges. A big thank you to them for their support.

Radnor House School
4th July 2019 - Announced as Radnor House School in Twickenham's preferred Local Support Group

Today, we were informed by Radnor House School in Twickenham that we have been selected as their preferred local group to support for the next academic year. This is incredible news. We were chosen from over 100 national and local charities. Only one national and one local group are chosen so, this is an amazing achievement. This will raise the profile of bleeding disorders and our group amongst a huge community as well as help raise vital funds toward putting on events to bring our families closer together. A big thank you to Amanda Nercessian Keysell for putting our name forward and supporting our application.

Starting Nursery & School event
15th July 2019 - Starting Nursery & School event

We had our first educational event in the Isle of Dogs with the theme being Starting School and Nursery. The event was well attended by some new and regular members as well as a good representation from the committee. We had a talk from Christina Burgess on well being and a great Press Conference from our Young Expert Panellists. Click here for more information about the day courtesy of our news reporter Viola Aslaner.

Committee Meeting
16th July 2019 - Committee Meeting

The committee had their second meeting last night. It was a really long meeting with so many exciting things to talk about including upcoming competitions, events, website developments, grant applications, fund raising, awareness raising campaigns, promotional materials, event booking systems, GDUK and Jeans 4 Genes day events and even registering to become a charity!

Shire Pharamceutical
17th July 2019 - Shire Pharamceutical Literature

The pharamceutical company Shire have provided us with some great literature about learning to self infuse and what it all means to live a life involving self treatment at home.

Local Familes with Bleeding Disorders
17th July 2019 - Local Familes with Bleeding Disorders - Awareness Campaign

We launched an awareness raising campaign asking all members to change their Facebook profile picture to our group logo in return for a free car sticker to promote our name even further.

Michelle and Matt Bibby
21st July 2019 - Michelle and Family Car Boot Sale

Michelle and Matt Bibby run a stall with their children at their local car boot sale raising not only awareness among the locals but also, £100 for the group. Big thank you to them all for all their hard work on the day and leading up to it.

Michelle Bibby
22nd July 2019 - Michelle Bibby has agreed to join the Committee

Michelle Bibby has agreed to join the Committee taking on the challenge of fund raising for the group. She has already achieved over £1,500 in donations to the group and has had some great fund raising ideas so this job is certainly perfect for her. Welcome aboard Michelle. We all look forward to working with you more in the future.

Annual Garden Party
28th July 2019 - Lisa annual garden party raises £740

Lisa and her family held their garden party for friends, family and neighbours on Sunday. After a full day of baking in the Saturday, over 40 people came along to support our local group whilst having a great time chatting and laughing and enjoying each other's company. Lisa's friend Jan made jam to sell to help raise funds and several friends brought along homemade cakes. They raised an incredible £740 to help this group continue to put on events for families living with bleeding disorders.