We were established in March 2019 and since then, have grown rapidly to over 120 members (almost 80 families) and become a registered charity.
Our members live with mild, moderate and severe forms of Haemophilia A, B and vonWillebrands but, we welcome those with other bleeding disorders too.
We believe that sometimes, parents, carers, siblings or children living with a bleeding disorder just want to connect with others experiencing the same challenges that their condition brings. It is therefore our goal to offer "support for families, by families".
Registered Charity: 1186979
Given the uncertainty we are living with at the moment, all events have been cancelled until further notice. They will all be held on new dates TBC. Those who had already booked for events will be given priority booking when we reopen bookings.