Local families with bleeding disorders are a group of families based in London and The Home Counties that offer each other support and understanding about what it is like to live with a bleeding disorder. We offer this support via educational and social events that offer guidance based on experience and, a network of families to create and build friendships within.

We were established in March 2019 and since then, have grown rapidly to over 120 members (almost 80 families) and become a registered charity.

Our members live with mild, moderate and severe forms of Haemophilia A, B and vonWillebrands but, we welcome those with other bleeding disorders too.

We believe that sometimes, parents, carers, siblings or children living with a bleeding disorder just want to connect with others experiencing the same challenges that their condition brings. It is therefore our goal to offer "support for families, by families".

Registered Charity: 1186979

Good Luck to Daniel this week who has challenged himself to swim 20 miles in a week to mark 20 years since his haemophilia diagnosis. Thanks Daniel for raising money for local families with bleeding disorders..



Local Familes With Bleeding Disorders Registered Charity 1186979,
Local Familes With Bleeding Disorders Events
Local Familes With Bleeding Disorders News
Local Familes With Bleeding Disorders Volunteer Pages



info@bleeding-disorders.co.uk


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