We were established in March 2019 and since then, have grown rapidly to over 120 members (almost 80 families) and become a registered charity.
Our members live with mild, moderate and severe forms of Haemophilia A, B and vonWillebrands but, we welcome those with other bleeding disorders too.
We believe that sometimes, parents, carers, siblings or children living with a bleeding disorder just want to connect with others experiencing the same challenges that their condition brings. It is therefore our goal to offer "support for families, by families".
Registered Charity: 1186979
Whilst we are not able to hold face to face events until it is safe to do so, we are still here to support our