We were established in March 2019 and since then, have grown rapidly to over 120 members (almost 80 families) and become a registered charity.
Our members live with mild, moderate and severe forms of Haemophilia A, B and vonWillebrands but, we welcome those with other bleeding disorders too.
We believe that sometimes, parents, carers, siblings or children living with a bleeding disorder just want to connect with others experiencing the same challenges that their condition brings. It is therefore our goal to offer "support for families, by families".
Registered Charity: 1186979
Good Luck to Daniel this week who has challenged himself to swim 20 miles in a week to mark 20 years since his haemophilia diagnosis. Thanks Daniel for raising money for local families with bleeding disorders..